Відео

If you're one of those people who gets a chapped red hiney over people "living on hand-outs," here's how you can help. Bring awareness to chronic illnesses like this, and help fund research for a cure! You think people who have to live on disability WANT to be on disability? It's embarrassing enough trying to apply when you're thinking to yourself "how do I convince someone this is even real when it's completely invisible?"

Where can we follow (intermediate) results?

Sorry , where & which countries are doing the clinical trials pls ? Ty

Dear Dr Ronald Davis, I’m commenting for two reasons (at only 9mins into this post)…Firstly, you captivated me with your calm and logical delivery; thank you for illuminating me and clarifying that not all cells follow the usual cycle and confirming the imuno/inflammatory nature of ME/CFS. Secondly, more importantly, I wanted to say that my stomach and heart sank when you mentioned that it was impossible for your son not to crash 😢 …it took me straight back to my memories of pacing with a heart rate monitoring watch. I was on a family vacation in our newly bought caravan (which we bought due to Covid19) which also happened to create the special interest of some Drs in ME/CFS and heart rate monitoring for pacing. The combination of being in a 6m/18 foot caravan and a fresh insight and the watch was key to helping me improve my ME/CFS. It enabled me to be with my family, sleep, go to the bathroom in a really confined but relaxed tiny space. All of those factors helped me to get through a “crash“ and for the first time stay within my own body’s energy boundaries and start to stay within my boundaries to ultimately start a slow but gradual improvement in my body’s energy levels (no progress week by week or month by month - but year by year there is a meaningful and lasting improvement). I do feel impertinent suggesting anything to you, but I’m guessing your son has had some of the best support possible, but if your son is bed bound, as I was, it may feel…isolating, boring, depressing? The tiny home that the caravan was gave me a chance to be “in” my family, a change in scenery. I could sleep, eat and interact with my family from my bed whilst they worked online, went swimming in an outdoor pool, walking the dogs etc and I always had company and rest and a view to the caravan site and all its goings on! I genuinely hope that your son finds a way to avoid “crashing“ so that he can move forward in his life and health. It’s such a shame that ME/CFS sufferers are used to doing and dealing with so much and are then so totally restricted and have to restrain eating, moving and even thinking! All my best wishes and thanks. Angela

Thank you so much for trying to help us!!! It means the world ❤

god speed

You need to listen to your Dr. Myhill in Britain.😊

Wish this video existed 7 yrs ago when I had to resign my job from the unknown/un-named illness (now known as MCAS).

Thank you! 30 years in made.worse.by 2nd vaccine....thank yu

Have you determined toxins (endo, actinomycetes, or mycotoxins) as a root cause for some?

Someone actually taking ME/CFS seriously and not trying to sell the backwards idea that we're just lazy or depressed or attention seeking; it's a legit illness with real triggers and an illness can be at least treated if not cured. The possibility of a cure though is amazing. But first we require more people in the medical community to understand it's a real and legitimate illness. Bless this gentleman and others working on figuring out what this illness is and what to do about it.

Can someone summarize this for me pls

صور الدماغ الشرايين والوعيه بل رنين الملون تلاحض شرايين مسدده واوعيه ضيقه لا يوصل الدم بشكل جيد لنحاء الجسم مما يدي كل هاذهي العراض دكتور بل الا ردن استكشف هاذهي العراض الي اعاني منها متذو سنين

Was this research a dead end?

Thank you so very much! Does this include fibromyalgia?

What about the people with dysautonomia that have severe reactions to medicines. Anything new i tried made me feel worse or my heart rate go crazy.

Just discovering Ron and his work. If I were rich, I would donate money to this cause without hesitation. I don't know if I have full blown ME, but I am exhibiting some pretty severe symptoms ever since I had a horrible norovirus infection last summer. I am in learning mode and just trying to manage my energy usage. Recently got a double vaccination for shingles and tetanus and that along with some intense physical exertion put me into the biggest crash yet. This has been an eye-opener. I simply can't do the stuff I used to do.

I crash after eating.

Update? And why on earth aren't you testing CAD / JAK STAT inhibitors??

can the Drs. or someone on here tell me if fibromyalgia and or ME CFS is recognized by any medical profession as being a neurological disease or syndrome can you refer my to any such literature would be helpful thank you from Canada

Please work in collaboration with Asha therapeutics! They're working on CFS drugs too.

What do you think the motive is for medicine to think it’s psychosomatic? I don’t see why they would lie on purpose?

Is it plausible that a disregulated hpa axis could also be a cause for some patients that have ptsd/cptsd as well as m.e?

Really hope there's something soon for us to take to make this horrible illness better. 😢

Thanks. Very informative. I have long covid with chronic fatigue. I have had adrenal gland deficiency for years. I’m on work short term disability now and it’s looking like I need to go on work long term. It goes through a third party. The stress added… like you said every case is different..

Long covid has destroyed my life. Thank you for this information.

Wake Up! Drugs are not the answer and only make matters worse. The medical cartel does not want a cure for anything so they can keep people buying their potions. As an energy healer with 45 years experience, I have found natural remedies for most of the illnesses that people are facing today, but the naive, brainwashed society is not interested. This is just another sign of the Last Days that we are living in.

I suffered from covid and then long covid. I knew it was CFS but I knew it was not a psychological problem, but still I went for antidepressants. They didi helped me but took a lot of time to come off them. Positive mindset, healthy vegetarian diet, meditation will certaily help .

Thanks for all you folks do . Had ME since a bad case of Mono in 1987. I've recovered over the years but have never been healthy since 1987. Maybe it's just coincidence but my wife was diagnosed with MS 7 years ago.

I have ME and the worst thing for me is people who think we are weak willed and scared of exercise Ive been unwell 27 years 😢.

Back surgery & bad divorce, ME since around 1996 to now 2024 & fibromyalgia.

Thank you both so much for all you do. I've had me/cfs for more than 60 years.

So what is the treatment

I think mine all started with having Covid and I never fully recovered. I had a mild dose of it back in 2020 . I never had mono . Thankfully , my condition is not severe like most, but if I don’t pace myself . I can be in bed for days with slurring my speech and word findings . There needs to be more funding . It’s 2024 and I live by a medical school . Majority of them I encounter. Don’t even know what it ME/CFS is . I had to explain it to my physical therapist the other day before we got started with my session .

This is fascinating. I feel ill from certain screens that use PWN (pulse width modulation, I think) to control brightness. Wonder if this is why?

I’ve had CFS after having my second child in 1994 and having Glandular fever. It returned on and off (never as bad as the first), although after an emotional time, it hit me again in 2022. After having COVID jab (I never had COVID) & a stomach bug. Bloods showed my innate immune system was activated. I did what I did last time, which was to eat as healthily as I could, exercise regularly, but not overdo it. CFS just got worse. So went to the doctor again. He confirmed that I was healthy, my oxygen sats were good despite having bronchectsis. However, had high inflammation (CRP & ESR), also had RF, so was diagnosed with Rheumatoid Arthritis. I actually got referred to a CF unit in between, which took a year to get an appointment (NHS in UK), but when they found out about my RA diagnosis, they could not treat my CFS 😮. Ridiculous!

This sounds like Robert Naviaux's Cell Danger Response - with the neighbouring cells being triggered for defense. Has this been researched or compared?

Nice one mate

Even if a cure comes about, will the medical community bury it? Not make the cure available because then theyll make no money from all the friggen doctor's appointments and labs and medications? I don't trust the so-called experts. Not after the plandemic

It feels like it is my list. Many things in common.

Thats crazy right?! They were so obsessed with having us vaccinated and on the lockdown but they have no interest in curing those who got hurt

❤

Sufferes are all too used to people taking advantage of our condition to line their pockets. I can't think of a legitimate reason for Dr Systrom twice using the phrase "in a strange way" to describe a perfectly normal way in which research moves medical knowledge forward. I don't like phonies and Rebecca Handler's affectation of shifting her eyes to the left. to the right and up, to reveal the whites of her eyes marks her down as a phony in my book. Looks like just another pair raising our hopes for their own gain.

I have had CFS/ ME - since November 1996. It started with glandular fever, and I have never recovered fully. Some cycles of debilitation last about 5 years of highly distressing sypmptology. in between that i managed to reduce symptoms, manage energy, but never , ever fully recovered since 1996. I was an athlete. I could bench press 150kg for 10 reps, squat 250kgs for 10 reps. Super fit and super powerful. One doctor - when i relapsed for the second time said 'you dont get a relapse of ME'. I told him to fuck off and left his surgery and wrote a letter of complaint. One of the other GPs in the surgery i went to had known me, and was a newer approach at that time - and he got the other Gp to write a letter of apology to me. What an arrogant big prick that man was. He was hell bent on take a tablet and that is. I took no tablets. For some reason, mysterious reasons, who knows, but the government in the UK dont want to know about this. I would hope that as long covid affects people possibly the same way as ME/CFS affects people money and research will get put into this area at some point.

Same thing here for my daughter. She's been like this for 10 years now. DWP thinks she doesn't have a problem, but right now, she's on the sofa with the curtains drawn and no light on because the light hurts her eyes. She is wearing ear plugs to block out the noise from the road and the neighbours. It's all she can do do lift the cup to drink some ginger tea, the effort of actually making it is too much.......thus is because she 'overdid it' on Saturday ( 2 days ago). She went with her daughter to a recall audition. Taxi there, taxi back, but she had to sit up and not sleep/rest for just under 3 hours, while she was there. She also had to respond to other people who were waiting for their children to finish too. It would have been rude not too. So this week she is paying the price for living a normal life for part of a day. And btw, after 10 years of this and numerous referrals, the Fatigue Centre have still never seen her.

It sounds to me like a viral “reservoir” could be the “river polluting the ocean”!

Seriously, doctors in my experience (and no not all of them I am sure, but those I had experience with...) are so useless with this. When I told my doctor about issues with shortness of breath as one of my main long covid symptoms, he actually started explaining me that 'it's really not possible that there is not enough oxygen in the room, if everybody else is breathing normally' (???) and also 'even if you stop breathing for 5 minutes, the oxygen level in your blood hardly drops'. I'm sure that's why people constantly just casually stop breathing for 5 minutes without the slightest sign of discomfort! And obviously this amazing fact will magic away anyone's breathing difficulties after covid infection, after all it's just an intellectual misunderstanding they had about their oxygen level! [/sarcasm] That was literally all he had to say about this. I still find it unbelievable.

LDN took me from low end of severe, sleeping up to 16 hrs/day, and/or crashing every few hours while awake, heavy brain fog - to a 50% improvement. Better productive sleep, eliminated daytime crashes / naps, and brain fog substantially lifted. I could finally leave the house a bit for errands and occassionally socialize. Mood improved and I stopped taking Lexapro. It normalized my chronically elevated CRP levels. All this occurred within 11 weeks. When I stopped taking LDN about 9 months later, no symptoms returned or worsened. Never did I have any negative side effects. I am always surprised to hear there are others who struggle with LDN. I am ready to try other drugs that may be helpful. I still struggle with PEM and fatigue, and just restarted LDN to see if it further helps. I've been off it for a year. Would like to try other drugs.

People are not robots!

Thank you so much for sharing your story! I wish medicine in the UK had progressed, but sadly this is still very real 🫣🩵